Comments on: Pregnancy Screening: Do it, or Don’t? http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/ Where I Throw Everything Into a Pot...and Simmer Sun, 20 Dec 2009 23:04:33 +0000 http://wordpress.com/ hourly 1 By: Cassie http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-6320 Cassie Tue, 28 Apr 2009 20:25:56 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-6320 The doctor recommended a songram test she said the name but everything after the results is a blurr. She said something about stay calm and don't worry ha ha easier said than done. Think i have been cryin ever since I left her office. My husband is unsupportive and seems to be on his way out depending on my choice. i guess my question is how do you do it alone, my oldest is 7 my youngest just turned 1. I want to be prepared well as much as I can be. I dont know anyone with a child with ds but I have been searching the internet for everything I can find on it. Thanks for listening. The doctor recommended a songram test she said the name but everything after the results is a blurr. She said something about stay calm and don’t worry ha ha easier said than done. Think i have been cryin ever since I left her office. My husband is unsupportive and seems to be on his way out depending on my choice. i guess my question is how do you do it alone, my oldest is 7 my youngest just turned 1. I want to be prepared well as much as I can be. I dont know anyone with a child with ds but I have been searching the internet for everything I can find on it. Thanks for listening.

]]> By: Cassie http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-6319 Cassie Tue, 28 Apr 2009 19:34:20 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-6319 Ok not sure if this is the right place to ask anything, I just talked to my doctor how told me after the screening I have a 1 in 30 chance of having a ds baby and I'm scared. I can see that the test arent very accurate. I have two girls niether have ds just feel really alone right now. Ok not sure if this is the right place to ask anything, I just talked to my doctor how told me after the screening I have a 1 in 30 chance of having a ds baby and I’m scared. I can see that the test arent very accurate. I have two girls niether have ds just feel really alone right now.

]]> By: Antenatal Screening Professionals http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-6185 Antenatal Screening Professionals Sat, 18 Apr 2009 08:35:12 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-6185 SBP software has launched a free online tool that computes First-trimester and Second trimester Screen test. http://www.sbpsoftware.com/trisomy-risk-calculator.html No registration is needed to use it, and and it can be used to contrast with risk estimates currently provided by specialized centers. More stuff about Prenatal Screening avaliable on the website. SBP software has launched a free online tool that computes First-trimester and Second trimester Screen test.
http://www.sbpsoftware.com/trisomy-risk-calculator.html
No registration is needed to use it, and and it can be used to contrast with risk estimates currently provided by specialized centers.
More stuff about Prenatal Screening avaliable on the website.

]]> By: Jenne http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-1960 Jenne Thu, 24 Apr 2008 20:15:36 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-1960 Trina, I'm posty Mcpostalot today, so I'm not putting this on my blog, and you've probably already seen it, but I wanted to share this with you. it was reviewed on Librarians Index to the Internet, and it's so beautiful it made me cry: Positive Exposure: The Spirit of Difference http://www.positiveexposure.org Positive Exposure is a nonprofit organization that takes and displays photos of people with genetic differences in order to celebrate "the beauty and richness of human diversity. The organization is a unique partnership between visual arts, genetics, mental health and human rights." This brochure describes the program and displays beautiful photos of individuals who were born with genetic diseases such as Sturge-Weber Syndrome, Lowe Syndrome, and albinism. Opens directly into a PDF document. URL: http://www.positiveexposure.org/files/positive_exposure.pdf Trina, I’m posty Mcpostalot today, so I’m not putting this on my blog, and you’ve probably already seen it, but I wanted to share this with you.
it was reviewed on Librarians Index to the Internet, and it’s so beautiful it made me cry:

Positive Exposure: The Spirit of Difference
http://www.positiveexposure.org
Positive Exposure is a nonprofit organization that takes and displays photos of people with genetic differences in order to celebrate “the beauty and richness of human diversity. The organization is a unique partnership between visual arts, genetics, mental health and human rights.” This brochure describes the program and displays beautiful photos of individuals who were born with genetic diseases such as Sturge-Weber Syndrome, Lowe Syndrome, and albinism. Opens directly into a PDF document.
URL: http://www.positiveexposure.org/files/positive_exposure.pdf

]]> By: Katrina Stonoff http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-1762 Katrina Stonoff Thu, 03 Apr 2008 03:39:56 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-1762 Yikes, Michelle. You're the third person I've communicated with <i>today</i> who had a baby with DS after having a negative Triple Screen. This whole screening thing is squicking me out more and more every day. Yikes, Michelle. You’re the third person I’ve communicated with today who had a baby with DS after having a negative Triple Screen.

This whole screening thing is squicking me out more and more every day.

]]> By: Michelle Z http://katrinastonoff.wordpress.com/2008/04/02/more-on-pregnancy-screening/#comment-1759 Michelle Z Thu, 03 Apr 2008 01:07:17 +0000 http://katrinastonoff.wordpress.com/?p=445#comment-1759 You know the funny thing is - I DID have the triple screen done. Not that it made a difference, I just like to be prepared & read books, etc etc - much like you were saying. I would have used my pregnancy to educate myself. My triple screen came back FINE - and both girls had DS. REALLY accurate test, eh? You know the funny thing is – I DID have the triple screen done. Not that it made a difference, I just like to be prepared & read books, etc etc – much like you were saying. I would have used my pregnancy to educate myself.

My triple screen came back FINE – and both girls had DS. REALLY accurate test, eh?

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